- Exhibition Details -
In the fall of 2020, teens from Next Step’s STRIVE program discussed representation in superheroes and noticed a gap. While many superheroes had “weaknesses,” there were no heroes with chronic illnesses – and specifically, none living with sickle cell. From that zoom conversation, Kara Jackson was born – a hero who, like them, had friends she trusted didn’t know how to talk to about her diagnosis. A hero who, like them, had big dreams but didn’t want others to limit her because she could get sick. Kara might also – like them – push too hard, make mistakes – and need space to learn from each one and move forward.This project, like all Next Step programs, uses the arts to create a safe space for young people to engage in conversations with peers about what it means to grow into adulthood with a chronic illness. It aims to raise awareness about sickle cell disease and let other youth facing similar challenges know that they are not alone.
- Moderators -

Jason and Devin McCourty are more than Super Bowl champions—they are dedicated advocates for families living with Sickle Cell disease. Inspired by their family’s personal experience and the legacy of their Aunt Winnie, they launched the Tackle Sickle Cell campaign in 2013 in partnership with the Embrace Kids Foundation. What began as a personal mission has grown into a national platform focused on education, increasing blood donations, and raising awareness and resources for Sickle Cell disease.
At this event, the McCourty twins will serve as panel moderators, leading a powerful conversation that elevates lived experience, medical insight, and the urgent need for equity in Sickle Cell care. Through their leadership and visibility, they continue to shift the narrative—ensuring no family faces Sickle Cell alone.
- Panelists -

Ashanti Sturgis is a 2nd semester senior at the University of Massachusetts Boston. Majoring in Psychology and double minoring in Criminal Justice and Communications, Ashanti cares deeply about people and endeavors to engage in work that helps people know that they are cared for and valued. In her free time, she is a volunteer counselor at the Hole in the Wall Gang Camp – a camp for kids living with chronic illnesses. Ashanti started her Next Step journey as a participant in STRIVE – and has attended and helped Next Step plan our annual campferences. Today, Ashanti continues to serve as an advocate at Next Step – by assisting in the delivery of fundraising and community awareness presentations that help others find community like she did.

Kepler Jeudy is the Program Director at Next Step, where he has spent the past 15 years supporting young adults living with chronic illnesses in building empowering, community centered connections. With 20 years of experience in leadership development, youth empowerment, and peer support programming, he has worked extensively with teenagers and young adults from diverse backgrounds facing complex health challenges. His work centers on creating empowered communities—spaces where young people can see themselves, share their stories, and realize they are not alone in navigating life’s hardest challenges.
Kepler specializes in program design, facilitation, and social justice–driven initiatives that foster resilience and belonging. He earned his BA in English from Wheaton College and completed his MS in Human Development and Family Studies at the University of Rhode Island.

Dr. Sharl Azar is the medical director of the Comprehensive Sickle Cell Disease Treatment Center and the Robert K. Kraft Chair of Diversity, Equity, and Inclusion at the Massachusetts General Hospital and Harvard Medical School. He received his medical degree from Oregon Health & Science University where he also completed his residency in internal medicine and his fellowship in hematology and medical oncology while also serving as Chief Fellow. He went on to complete an advanced fellowship in hemostasis and thrombosis at the University of California, San Diego. Dr. Azar is passionate about the care of patients with Sickle Cell Disease, Thalassemia, and other hemoglobin disorders. His work focuses on improving systems of care and political advocacy for patients living with sickle cell disease to build a true medical home while combatting inequities in health care. @TheSickleDoc on Twitter, Bluesky, and Instagram.
- Agenda -
4:30 PM
Welcome Reception & Networking
5:00 PM
Opening Remarks
5:15 PM
Panel & Q&A
6:15 PM
Reception & Networking
7:00PM
Event End
4:30 PM
5:00 PM
5:15 PM
6:15PM
7:00 PM
Welcome Reception and Networking
Opening Remarks
Panel and Q&A
Gallery Walk & Networking
Event End
LabCentral 700 Main St. North
Cambridge MA, 02139
